Shea Tanis, Ph.D., FAAIDD

Emily Shea Tanis, PhD, is currently an Associate Research Professor at the Kansas University Center in Developmental Disabilities, Life Span Institute, University of Kansas. She has published articles and investigated the definition of intellectual disability, the measurement of adaptive behavior and support need, the construct of self-determination, federally funded supports and services for people with IDD and their families, and self-directed employment strategies. She is nationally recognized for her expertise in applied technology solutions, Technology First Systems Change, cognitive accessibility, and advancing the rights of people with cognitive disabilities to technology and information access.

She also serves as PI for the State of the States in Developmental Disabilities Longitudinal Data Project of National Significance funded by the Administration for Community Living, U.S. Department of Health and Human Services. For over 40 years, the project has investigated determinants of public spending for Intellectual and Developmental Disability Services and Supports in the United States. Dr. Tanis has been a co-author on The State of the States in Intellectual and Developmental Disabilities Monograph since 2011. She is the sibling of a man with a traumatic brain injury and is past chair of the National Sibling Leadership Network and co-founder of the Colorado Sibling Leadership Network Chapter. She received her PhD from the University of Kansas, Department of Special Education and BA from Brown University in Psychology.